The Joys of Socializing
04 Nov 2010 12 Comments
in Asperger's, autism Tags: Asperger's, autism, Brain Fog, burnout, eyes, glare, memory, noise, sensitivity, sensory overload
The joys of socializing were experienced by me again yesterday and I was reminded of why, even though I enjoy it in small doses, I make sure the doses are few and far between.
First of all I would like to say that, contrary to comedic stereotypes, my mother-in-law has always been kind to me and I have no problems with her as a person. Secondly, I post this not in search of sympathy, and not to complain, but to document my life on the autism spectrum. I hope such documentation may be of help to others, as I have benefitted so much from the blogs of my fellow autistics/Aspergians who have shared their lives.
Yesterday my wife and I visited my mother-in-law, who lives about a one-and-a-half hour drive away. My wife drove. There was a short visit and then my wife and her mother went out to do some grocery shopping while I walked for some exercise.
After they returned there was some more socializing in the living room. The low sun was shining into the room from over my shoulder as I sat with my back to a large window. The bright sunlight was hitting my mother-in-law’s white slacks. The dazzling sparkling glare was so penetrating and painful to my eyes that I put on my sunglasses. My mother-in-law asked if I could see in the room with my sunglasses on. I assured her that I could see just fine and attempted to explain about the glare from the sun. I quickly realized that my explanation was being met with polite incomprehension and possibly the feeling that I was nuts.
The radio was playing classical music fairly loudly in the next room. My wife was yelling in order to converse with her partially deaf mother. The pain in my ears was unbearable. I considered going back outside to walk some more but rejected that idea as rude since there had been so little social time with my mother-in-law. I picked up my backpack and retrieved my earplugs. I held them in my hand and thought of inserting them in my ears to gain some relief. I vacillated several times and returned the plugs to my pack as I did not want to appear rude.
On the drive home, to shield my eyes from the low sun, I tied my scarf over my sunglasses like a blindfold (as I said, my wife was driving
). I commented to my wife that I felt so very tired.
The sensory overload from sight and sound had drained my brain. Later in the evening, when I tried to put some comments on friend’s blogs and reply to comments on my blog, I found that I just couldn’t think. It was as if my brain was mush. When I was diagnosed in 1993 with Chronic Fatigue Syndrome I learned that this was called “Brain Fog.” Writing was really difficult. I managed to write a couple of brief comments or replies, if I remember correctly. I noticed that Rachel and Laura had each posted on the “cure” but my brain could not remember from the beginning of one paragraph to the end, so I couldn’t follow their well written arguments. So I decided not to comment at all on the “cure” (partly because, being new to the community, I am not up on the issues, and partly because I was struggling so much with my thinking and writing).
So now it is almost twenty-four hours later and my brain is still somewhat foggy. I probably shouldn’t be writing. I am still tired and feeling rather numb in the head, although I am on the mend. I got a phone call from my doctor’s receptionist this afternoon reminding me that I have an appointment on Monday. This took me by surprise as my brain supplied no memory of an upcoming appointment. The receptionist then told me that I had made the appointment for the purpose of getting my memory tested!
Good grief!
So was it all worth it? Yes, it was nice to see my mother-in-law and to have an outing with my wife. But I don’t think I’ll do it again tomorrow. At least not until the fog lifts.
Noise
16 Oct 2010 2 Comments
in Asperger's, autism, senses Tags: Asperger's, autism, noise, senses, sensitivity, sensory overload
Noise. What most people refer to as sound is often experienced by me as unpleasant noise.
Before I had to go on Long Term Disability benefits many years ago, our team at work would occasionally go out to a restaurant to celebrate someone’s birthday. The noise level at the table was very high and we were surrounded by tables with similar high decibel conversations. When trying to listen to an individual near me at the table, I would not be able to filter out the other conversations. All the sounds just blended in to one confusing noise. If I cupped my hand to my ear I might be able to grasp a bit more of what was being said to me. I am sure they all thought I was quite deaf.
My hearing actually tests out as very good when I am in one of those sound-proof rooms and the audiologist feeds me one word at a time. My hearing falls apart when I have to separate a word from a jumble of words all coming at me at once. My specialist (ENT) says this is a problem in my brain (higher processing level) as my ears are fine.
When my family is sitting around the table socializing I often need to have some “down time”, so I go upstairs and try to read. Unless I put in earplugs or wear ear protectors, I have a very difficult time reading because the words coming in my ears get all mixed up with the words on the page. This also happens if the radio or TV is playing.
If the text reads:
Look! See Dick run. See Jane skip. See Spot jump.
it will come out something like this if the radio is on:
Look! Do you See think North Dick Korea will run See develop nuclear Jane skip weapons and See Spot bomb jump us?
except the colours aren’t there, which makes it even more confusing.
Trying to read under such conditions just sucks all the energy out of me and I am left exhausted with my head hurting and all my brain circuits flooded. I have to put the book down because my mind just can’t cope.
Not all sound is noise to me. I find I can hear one-on-one conversations in a quiet space. And I do enjoy some music very much. There is a tea-room in a small town not far away. The owner plays Baroque or Renaissance music, or nature sounds, at a soft level. I find it soothing. It enhances my enjoyment of the meal.
But when I was at the ENT specialist a couple of weeks ago there was a pop radio station, with a motor-mouthing DJ, playing through a ceiling speaker. I was trying to read a magazine. I felt like asking the receptionist if they had ever surveyed patients’ preferences as to sound bombardment. I didn’t ask because I have grown accustomed to being the odd man out.
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