Just for the Record: vulnerable to moods, beliefs, and criticisms of others.

Green Play-doh with can and accessory toy (Pla...

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I decided to copy to this blog, just for the record, a comment I made today on Lisa’s blog. One of the reasons I blog here is so that my children may some day get some insight into what life is like for this Aspie, so they can read and say, “So that explains it!” And so if I put a comment elsewhere that reveals a bit of what life is like for me, I may copy it onto this blog for future reference.

So here is what I wrote in response to Lisa’s question (for the full story, and the valuable insights of others, please see Lisa’s original post and the comments): 

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“Hi Lisa,

I can sure relate to what you are saying here. It seems that you have described my own experiences. 

I get so impacted by the feelings of others, and by their interpretation of the reality at hand, that I take on their stance and doubt my own gut instincts. This, I think, is because I have been made to feel “wrong” for so much of my life that I automatically doubt my own beliefs when contradicted or challenged.

 I have to be very careful about what I watch on the screen. If someone is hurt or upset, that can impact me for weeks as it play over in my mind. A couple of weeks ago I finally watched Braveheart after avoiding it for years because I had heard there was violence in it. Well, I shouldn’t have watched. When the girl is killed by the Magistrate – well two weeks later I still feel sick and hollow inside. So filtering what I expose myself to is absolutely essential, and that would of course include people as well as DVD’s.

 I often lie awake playing interactions over in my mind. One way I have found to get some peace is to repeat a phrase over in my mind, such as a bible verse or mantra, to displace the thoughts. Also I try to concentrate on (focus on) my breath so that my mind calms due to the effort needed to stay focused on my breath. But often my mind is in such a buzz that I simply cannot distract it, and so I spend hours tossing and turning while my mind spins.

 I find expressing gratitude for what is, including me as I am and my life as it is, helps me centre and settle and calm.

 And I remember that the same people who have convinced me that I was wrong in the past have often proven to be wrong themselves. This gives me more confidence in my own judgement. But often I forget to remember, and so get undermined again in the present situation.

 But I have no sure-fire method. I am only learning to play this Aspie game, and I am so grateful to you and others who post and comment. I have learned all I know here in Aspie Bloggyland and I am greatly encouraged here and look forward to more growth.

 And that is something to be grateful for and something that helps me to centre more, and trust myself more – the fact that there is growth! I can see the growth in you through your blog, and I can feel it in myself. And that is such an encouragement.

Love and hugs and blessings,

Bruce :)

P.S.

I often find it hard to know what to do or what to believe. I seem to have a lot of self-doubt. I think this is because I really want to connect, and am willing to bend my guts in order to do so.

But the flip side to this coin is that I can be extremely stubborn, and stick to my own view, and essentially tell the world to shove it. I can simply close myself off to others and they have no access to me at all. This is what I did to my parents when I was in my teens.

This, I think, is a form of self-preservation. If I can’t connect without betraying myself, I put up an insurmountable wall.

So the pendulum can swing from being play-doh in the hands of others, to being a sharp-edged chunk of steel reinforced concrete.”

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Hmm….  Play-Doh vs. Braveheart!  The movie of my life… hah! :)

Please visit Lisa’s blog (linked above) to benefit from the full discussion. (that’s not to say your comment wouldn’t be appreciated here, also, if you feel so inclined :)   )

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Walking by the Light of Lisa’s Lantern

This post is actually a response to a question posed by Lisa on Alienhippy’s Blog. She asked us to share about “…the little you that is trapped inside. The one that you would really love to let out but can’t for whatever reason.” For Lisa it is symbolized by her “Shirley.” My response grew too big for a comment, so I thought I would post it here as a post.

Lisa, you really hit on the key here methinks! I have been thinking about who my “Shirley” might be all afternoon while I was out shopping. I have some likely candidates such as a steam locomotive engineer (driver), a medical researcher who offers compassionate care to his patients, or a landscape painter such as Camille Pissarro. But I can think of reasons why these would not have worked. Or perhaps I have left painting so far behind I can’t even imagine resurrecting it, and I am too old to study medicine.

So I go back to when I was not concerned about the opinions of others and I see a preschooler who would go up to the front of the streetcar (tram, trolley) and ask to ring the bell. When the motorman would say so, I would clang the trolley bell to warn cars or pedestrians. I loved being at the front clanging the bell.

Then when on a train I would walk up the aisle handing bits of torn paper to the passengers as their “tickets.” After everyone had a ticket I would go the length of the coach calling out “tickets please” just like the real conductor and I would collect all the bits of paper.

In first grade I was the class clown, doing Charlie Chaplin imitations and getting the kids laughing so hard.

Then my world went dark. 

(Edit (2010/12/22): By “dark” I don’t necessarily mean depression. At first it was a sense of being different in some unnameable way, a bit weird, on the fringes, having ideas and enthusiasms and interests and passions that others did not share, being the creative non-conformist one, unable to connect as well as I would have liked, being told what I did and thought was wrong, etc.. Then in my early teens, over a split-up with a girlfriend, I began a journey into depression. But I did manage to weight-train and win my high school heavy-weight wrestling championship so the depression wasn’t so deep that it stopped me cold. There were definitely periods of time when I was paralysed by depression and I do remember those periods as very dark indeed.)

I remember going to a child psychiatrist at around six or seven years because I was a problem to my mother.

Contrast my little ticket collector with a young man in his teens who would ride in the vestibule at the end of the coach because he could not enter the coach with all those eyes looking at him. And who would not ask a girl out for eight years of his adolescence and young adulthood. And who saw his psychiatrist every Saturday morning at 11:00 am for six of those eight years, knowing something was very wrong with him but having no idea how to fix it. A long dark tunnel indeed.

Nobody knew of Asperger’s then. Nothing could adequately explain my life.

Happily there was light at the end of that tunnel. I married at 32 and am blessed with a lovely family.

But when working as a social worker, while raising my family, I would hide in my office on breaks and at lunch simply because I had absolutely no energy left with which to interact with my colleagues. I absolutely needed the downtime to recuperate. This prompted one of them to label me “The Invisible Worker” (was this a form of adult bullying??).

I can enter a coach now without problem so there has been healing of some sort. I still don’t like crowds or groups of people but I can handle them if absolutely necessary for brief periods of time. I always travel in my own car though because I just don’t like public transit.

But where did that little guy who joyously clanged the trolley bell go?

I began my blog “born 2b me” because I was searching for the real me behind the masks of social conformity. I wanted to meet the me that I was born to be, not the me that society shaped. I think this is why I so relate to your explorations, Lisa, on Alienhippy’s Blog. We seem to be on a similar quest.

After about 4 or 5 posts in July 2010 I gave up. Then I discovered Aspie blogs in August 2010 and had a huge quantum leap in self understanding. Asperger’s seemed to explain all the strange and unusual aspects of my history, in a way that nothing else ever had. So I started posting again at the end of September 2010 about my probable Asperger’s.

But as you say Lisa, it is not Asperger’s that keeps us trapped, it is our own fear of what others will think. How to get over that hurdle is Chapter Two of the saga. I’m glad I have you and other explorers to walk with on that path. I have noticed that since I identified with Asperger’s, I am less concerned about what others will think, and this has been liberating to a degree. I hope this sense of freedom and lessening concern will grow. So I don’t have a simple answer for how to get out of the trap, but I am trusting my ever-increasing understanding of my Asperger’s to help.

But I am still much too concerned. I can agonize over a phrase in a comment or post and find I can be quite tense when writing. But awareness of this is a step in the right direction. And I can get so uptight in some face to face encounters that I am virtually speechless! But I shall keep on keeping on!

Thank you so much Lisa for being such an inspiration. And thank you for all the laughs and giggles. Your willingness and ability to share your journey is a blessing to me and many others. Keep your lantern burning. It gives light to so many others.

(edit:2010/12/22:  ’10 replaced by 2010)

Fitting in.

Fitting into group situations has often been a problem for me. Here are some of my thoughts on this:

Body language, facial expression and tone of voice:

I once worked with a team of five or six guys and there was a lot of kidding around, teasing, and playing of practical jokes. They would exchange what would, on the surface, appear to be insults, but everyone would laugh good-naturedly and joke back. Whenever I tried to join in, it seemed to put a damper on the situation and the group would disperse or get back to work. They seemed to take my joking as if I were being deadly serious.

It took me a long time to realize that I tend to not display much facial expression and my speech is close to a monotone. Because I am uptight in social situations my body is tense rather than loose and expressive. With a flat face, tight body, and a flat voice, I came across as very serious. My “joking”, although it did not differ in content from the other guys’ joking, was perceived as an insult because it was accompanied by serious-looking body language and facial expression, and a serious-sounding voice.

Thorough, and therefore slow, cognitive processing:

I find it difficult to process the conversation on the fly. My mind needs lots of time to digest what was said and to explore every option. It takes me a long time to think up a thorough response to the ongoing conversation. I tend to weigh all the alternatives and carefully formulate a creative and intelligent response.

But by the time I get my answer out, the group has gone on to a totally different subject and my response seems so out-of-place. They have left the former subject behind and are often reluctant to revisit it. Hence I feel quite “out of sync”. Of course, by so thoroughly digesting the former conversation in my mind, I have missed half of the current conversation, so I fall even further out of sync with the group. 

And when it came to joking, as discussed above, my timing was probably off because the group had moved on to another area of kidding before I had a chance to make my contribution.

Anxiety compounds the problem:

The difficulties compound exponentially over time, as each difficult social interaction makes me even more tense at the next one. Eventually, giving up seems to make sense.

Solutions:

But giving up leads to loneliness, which is not really what I want – at least not all the time. So I try for one-on-one conversations with my family (and occasionally a friend). And I have started blogging, but I guess you know that. :)   Blogging slows down the pace of conversation to a more manageable level. And I have met some really nice people in the Aspie/autie community.

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